Our Mission: We Are Stronger Together

Patient advocacy is the heart and soul of The Celiac Disease Foundation. We are committed to supporting legislation and regulatory policies that hold promise to advance diagnosis, treatments, and a cure for celiac disease. For more than 30 years, we have worked diligently with our national network of advocates for federal recognition of celiac disease as one of the world’s most prevalent – and least diagnosed – genetic autoimmune diseases affecting more than three million Americans … and counting. In recent years we have expanded our work to the global arena, leading the U.S. effort with our international partners to align gluten standards and support research that informs this effort.

We partner with our Congressional champions, U.S. regulatory agencies including the Food and Drug Administration, the U.S. Codex Office, the National Institutes of Health, the Department of Defense, and our international colleagues to ensure our efforts – and any endorsements we make – are aligned with our mission and the lived experience of our patient community. We constantly assess the status of the policy and regulatory landscapes to determine the best path forward in our advocacy efforts.

Our policy agenda, outlined below, guides our positions on legislative and regulatory proposals at all levels of government. Our engagement, endorsement, and other positions are guided by the following factors:

• Advocating for global, federal, and state investments in patient community needs
• Enhancing patient relationships with government
• Driving innovation and scientific breakthroughs
• Promoting diversity

Supporting patient community needs and their engagement in advocacy

Please join us as we work to elevate celiac disease both around the world, and as a critical part of our nation healthcare agenda.